CFS/ME and Me

CFS/ME and Me is a blog about my experience having this disease. I want this blog to be a resource for people to come learn about (and occasionally laugh about) CFS/ME and the effects it has on those suffering from it.

Thursday, May 25, 2006

High School

So my cousin graduated today. It was really nice. But what I hate is how there are some people that get clapped for and some people just get looked at like, "Eww, you?". I just hate that.

So I am supposed to graduate next year. I don't think I will walk across the stage like most. The school would let me, but it would be so incredibly auckward. The people that were my friends but bailed on me when I got sick would all be there. I think I could face one at a time but all of them at once seems like a death sentance.

High school for any person with a disability is usually rough. CFIDS is really hard because of the ups and downs. Classmates say, "Well, you look ok..." Well, my dear, looks are deceiving! I have been on homebound schooling since sometime last year. Since then, my whole perspective on life has changed. You know, I used to be consumed in my pecking order at school. I HAD to be the popular girl. Now, all of that isn't so important. In fact, I like the way I am now much better than the way I used to be.

Well, thats all for today. I'm about to keel over dead if I don't go lay down. Night.

Wednesday, May 24, 2006

New Test Identifies Mysterious Disorder

Here's a quick read about a new test possibly indentifying a componentof CFS. Maybe we're getting colser to a cure!

"The test gauges the amount of an immune enzyme that protects the body against viruses. Those with chronic fatigue syndrome have an abnormal form of the enzyme that is more active, yet less effective than the healthy form of the agent."

Continue reading "New Test Identifies Mysterious Disorder">>

Tuesday, May 23, 2006

Weird Cognitive Behavior



I am currently working on my Chemistry and Algebra II credits for highschool. Those are DEFINITELY my worst subjects. There is somethig about numbers that just doesn't register in my brain. I think this MUST be related to my CFS. I never used to have this much trouble with math. Let me give you an example. My homebound teacher, lets call her Ms. Jones, is asking me what 3 x 3 is. I think about it, and say with enthustiasm, "Six!". She looks at me like I've a mutated bumble bee without a brain, and says, "No, try again". I just think, "#&^%, what is wrong with me???".

I can do all the hard calculations in my head, but the simplest thing, like 2 x 2 and 3 x 3 just gets me! I need to think of a way to tell people about the cognitive issues without having to lecture an hour about the effects of CFS on the brain.

Well, those of you suffering from any disease or ailment, here's a thought:


ATTITUDE

There once was a woman who woke up one morning,
looked in the mirror,
and noticed she had only three hairs on her head.

"Well," she said, "I think I'll braid my hair today."

So she did and she had a wonderful day.

The next day she woke up, looked in the mirror and
saw that she had only two hairs on her head.

"H-M-M, " she said,


"I think I'll part my hair down the middle today."

So she did and she had a grand day.

The next day she woke up, looked in the mirror and noticed that she had only one hair on her head.

"Well," she said, "Today I'm going to wear my hair in a pony tail."


So she did and she had a fun, fun day.

The next day she woke up, looked in the mirror and noticed that
there wasn't a single hair on her head.

"YEAH!" she exclaimed, "I don't have to fix my hair today!"

Attitude is everything.

Monday, May 22, 2006

A Day In My Life

So a day in my life: Wake up at 11:00, try to get up. Give up and watch tv until 12:00. Try to get up again. Finally up and ready for the day(which is almost half over to the rest of society). Look for some cereal (because it's breakfast-time for me!). Forget what I was doing and realize it's lunchtime! So then my mom makes something or i microwave a frozen dinner. Frozen dinners are God's gift to YPWC (Young People with CFIDS). Eat it, watch tv. Take an aleve.

Realize I am a student and need to graduate so I try to work on some homebound school. By the time I get going its already 2:00. Work on school and surf the net (one of my only outlets to the rest of society). Realize its 4:00, turn on Oprah. Wonder when Oprah is going to do a show on CFIDS or at least on children with disabilities getting mistreated in the school. Ouch... too much thinking. Gotta take a nap. Wake up. Wow, it's already 7.

Go to my Grandma's house. Thats the place I go to get away from it all. Meet a friend there. Then it's already 10:00. Wow, i need to get ready for bed. Then forget what I was doing and never take a bath. Now it's 12:00. Hmm. Can't sleep. Insomnia is KICKING IN. Watch paid programming. Preferably the one about the "Magic Bullet" blender. Dang, it's 3:00. Go to bed. sleep after an hour. Then by 11 the next day the vicious cycle begins again. Oh Bah Humbug.

Just a day in my humble life. I'm sure all you PWC's are nodding your heads in aggreement. Have a great day, all!

BTW, that lady up there isn't me. =-)

Hi!

Hey there,
Just refer to me as Sweet n Low. I'm a 17 year old girl from Somewhere, USA suffering from Chronic Fatigue Syndrome. I want to let the world know what it it like from MY point of view. I'm not looking for sympathy, I just want everyone to know this IS a real disease and it IS an epidemic that is sweeping the nation. With over 7 million people affected by this in the United States alone, it seems there would be more people who give a damn about reasearch. I am just hoping to make a difference in someones life with my stories and input. TTFN
Sweet